MSA (multiple system atrophy)

Stay balanced while you get fit! 

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Fabulous find

Posted by [email protected] on October 17, 2019 at 1:30 AM Comments comments (0)

Wow! for female wheelchair users, I found online at Amazon.ca, a cotton (breathable) sleep bra for that I use everyday. Large plastic snaps for front close, wireless, no back seam or hooks, comfortable....


Online Over-pricing

Posted by [email protected] on April 3, 2019 at 12:30 PM Comments comments (0)

feeling disgust when online everything for disabled/elderly/medical is highly inflated. Started looking in baby stuff. Babies also have a hard time eating, balancing, walking... :)

Wheelchair Woes

Posted by [email protected] on March 10, 2019 at 1:00 AM Comments comments (0)

Do you know someone in a wheelchair? Hair winding around the small wheels slowed me down considerably.

Thought I was slowing down/getting feeble....


Apparently it should be done every 6 months--who KNEW? (probably everyone) 


Another person pushing was no problem. So caregivers may not notice.


Getting around my home was no problem--what's a few seconds? Where I DID finally realize something was wrong was LONG distances (long hallways, across lobbies, etc). Turned my wheelchair over and discovered the small wheels weren't spinning. The problem was hair wrapped around the wheels and in bearings.


In retrospect, the ramp problems on the handibus, getting over thresholds, using my arms to supplement foot propel have disappeared!


The only thing I'm dealing with now, is using the same amount of force it previously took, has me going at excessive speed or running into things! 


Gift idea!

Posted by [email protected] on November 4, 2018 at 10:50 PM Comments comments (0)


Poncho coats/capes. Ideal gift for anyone in a wheelchair. Long in front and back, short on sides. Doesn't get caught in wheels. No buttons, zippers, fasteners. Variety of weights/fabrics/colours for indoor or outdoor warmth. If it's REALLY cold, it layers overtop jacket.


Why the Need to Sue? Is Dying the only recourse for the Disabled?

Posted by [email protected] on March 26, 2018 at 2:05 PM Comments comments (0)

Having experienced difficulties in Alberta with health and home agencies, gov't, AISH, this is far too real!

https://ctvnews.ca/" target="_blank" rel="nofollow">https:/www.ctvnews.ca/health/the-solution-is-assisted-life-offered-death-terminally-ill-ont-man-files-lawsuit-1.3845190?cid=sm%3Atrueanthem%3Actvedmonton%3Apost&utm_campaign=trueAnthem%3A+Trending+Content&utm_content=5aad037d04d30124c05dbe67&utm_medium=trueAnthem&utm_source=facebook


You may need to paste link in browser. I couldn't get it to work by just clicking on it.

crocs

Posted by [email protected] on October 30, 2017 at 12:00 PM Comments comments (0)

found crocs that gave good grip and were different from the traditional. I found boots, shoes, lined clogs, multiples of colours... All with a pic of the BOTTOM to show grip. One user noted wearing a pair of crocs clogs in the shower for better grip. I've used the shower/sink to clean shoe treads to give more traction, as floors tend to be dusty.



Popcorn Twists Replace Chips

Posted by [email protected] on August 27, 2017 at 12:25 PM Comments comments (0)

NEW FIND! Emailed Coop (who delivers most of my groceries) that I was experimenting to replace beloved potato chips (choking hazard). They sent Popcorn Twists. I am delighted. They melt in your mouth, make no mess, easier to pick up, less calories, satisfy my "chip urge", and the nutrition is based on 50 g (4 cups vs 33 chips)...


"They" told me I have dysphagia. I guess the coughing I've been doing for years has a "word". I've just operated on the theory that if a food is hard to eat, you just don't eat it anymore. Knowing this and having a list of foods to avoid, makes me understand senior care/food more. Avoiding soup is no problem, as it's not worth the effort to eat anyway. Thickening stuff? Good idea, I just can't see opening the thickener lid, measuring, stirring... Worthwhile suggestion? A ol' fashioned sugar dispenser.

Changes

Posted by [email protected] on June 6, 2017 at 11:45 AM Comments comments (0)

added a foot propelled wheelchair to repetoire.Loaner was hand propelled which was hard on arms and shoulders. Use my walker for standing. Nice to have a choice. Have found the "chair" is more comfortable than my furniture, more stable, especially in the wind. I like being able to go out in front of my building and read in the sun.

Got new walker. Guess WD40 won't do it anymore. It's been at least 5 years. Guess they wear out.

Losing more voice, more saliva in mouth, less balance, less coordination. More difficult in shower.

On wait list for nursing home. It's been 3 months though, and have found new ways to manage, so when the call comes, I may turn it down and go to the bottom of the list. Can't find an upside except they do the cooking and cleaning.

Well-written letter

Posted by [email protected] on March 14, 2017 at 9:50 AM Comments comments (0)


AHS Placement

Posted by [email protected] on February 10, 2017 at 11:35 AM Comments comments (0)

AHS is processing a supportive living placement for me. I need to check out cost. I do not understand how I can survive on an AISH allowance of $1588 and still meet additional expenses. Other things to consider are the pros/cons of living on my own versus an institution.


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